Atrial Septal Defect

Tara D'Alessandro

tara_mommy09 — Sat, 15 May 2010 13:01:52 -0400

Tara was a 26 week micro preemie born on October 1, 2009....among other things I had IUGR that restricted her growth to that of a 21 weeker, she weighed only 15 oz (430 grams) when she was born. She has overcome a great many things, primarily her small size.

Feistylioness78

Feistylioness78 — Sun, 18 Oct 2009 20:47:26 -0400

Maisy Grace

martindale10 — Sun, 11 Oct 2009 15:29:37 -0400

Maisy was born with a host of congenital anomolies that have required many surgeries. She is walking and using lots of signs to tell us what she wants. She is amazingly resilient and thriving despite her setbacks in life. She is a happy and fun little girl who loves to pull on her vent to get immediate attention! She is now off her vent when she is awake.

Finn

WeBeGunthers — Sat, 30 May 2009 23:02:08 -0400

Alexandrea Blase

Nichole Blase — Thu, 23 Apr 2009 23:54:59 -0400

Alexandrea was born at 26 weeks on August 6, 2006. We are foster
parents, and we were called to take "Ali" on October 12, 2006. We were
able to go and see her for the first time on October 13, 2006. She had
just come out of recovery for getting her trach placed. We spent the
next week at her bedside everyday.

Dylan O Sullivan

rowemarie — Sun, 29 Mar 2009 06:06:24 -0400

Celia

Gretchen-Celias mom — Wed, 18 Jun 2008 21:22:00 -0400

Charlotte Keiller

Charlotte Keiller — Fri, 06 Jun 2008 15:43:29 -0400

Charlotte Jean Keiller, where to begin - July 9, 2002 was one of the happiest days of our lives when she was born. She was so tiny and precious. What an angel. We knew that everything was not 100% when she was born, as she had some open lesions on her head that we were told were Aplasia Cutis Congenita.

Courtney Horne

Courtney Horne — Fri, 06 Jun 2008 14:39:55 -0400

My child Courtney Faith Horne was born at 36 weeks on April 23 2002, she weighed 9lbs 4oz was born with hydrocephalus, had a VP shunt placed at 3 days old, open heart surgery at 1 1/2 wks for an ASD/VSD repair and kidney surgery at 2 1/2 wks she was born with right kidney only. She had nissen and g-tube placed in July 2002. Because of all the surgeries her trachea was weakened and she ended up having severe tracheamalacia which is how she got her trach placed in September 2002, she had a cleft palate repaired in June 2004.

Jordan Beal

Jordan Beal — Sat, 31 May 2008 17:01:01 -0400

Jordan David Beal

Born: 11/7/2002

Weight: 4pds 4oz, Length: 15 1/4 in

Jordan was a bit early. But is fighting hard to get through.

Diagnoses:- laryngomalacia and grade 3 subglottic stenosis- multiple congenital anomalies (still testing syndrome unresolved)- pulmonary hypertension, asd, vsd (holes in heart) - seizure disorder- missing kidney- developmental delays- g-tube dependent- feeding disorder