http://www.trachkids.org/medical-conditions/congenital-lobar-emphysema View Categorized TrachKid Profiles. en http://www.trachkids.org/members/484 <div class="trachkid-profile"> <span class="portrait" style="float:left;margin:0 0.5em 0.5em 0"><a href="/members/484"><img src="http://www.trachkids.org/files/imagecache/UserImage_Icon/files/portraits/DSC_0052 (Small).jpg" alt="DSC_0052 (Small).jpg" title="DSC_0052 (Small).jpg" /></a></span> <p>During my pregnancy with Harlie we learned of her heart and lung defects.&nbsp; They told us that she had a 5% chance of survival after birth, if she made it that far.&nbsp; She did, and as soon as she was born, we could see she had many more problems than we anticipated.&nbsp; </p> <p> Harlie has Goldenhar Syndrome (a craniofacial syndrome), VACTERAL Association, and Congenital Lobar Emphysema. Harlie’s heart defects are: L-TGA, VSD, intermittent 2nd degree heart block, small right ventricle, 2 small Superior Vena Cava’s (instead of 1 large SVC).</p> </div><p><a href="http://www.trachkids.org/members/484">read more</a></p> http://www.trachkids.org/members/484#comments Female North America One Cardiac Defect Congenital Lobar Emphysema GoldenHar Syndrome VACTERLS Association Sun, 22 Jun 2008 09:33:26 -0400 lifeisgood 494 at http://www.trachkids.org