Arthrogryposis Multiplex Congenita

Aleyda Espinoza

Aleyda Espinoza — Sat, 07 Jun 2008 17:11:36 -0400

Aleyda Pallares Espinoza born December 22, 2004. She weighed 6 pounds 9 ounces. She was 17.5 inches long. She was born in Hobbs, New Mexico to Luis and Laura Espinoza. Third child and first girl in the family. During the pregnancy I always got told every thing was ok and every thing looked good. Have had my 2 boys one at 28 weeks and the second one at 36 weeks, I was put at high risk. My first pregnancy had been a little girl and I lost her at 20 weeks. My second one was my first son and I went into labor at 28 weeks he weighed 2lbs 2oz. He is now seven years old and as normal as can be.

Esther MeiLing

Esther MeiLing — Sun, 01 Jun 2008 18:44:23 -0400

This is Esther MeiLing we call her Estie. She was born with Arthrogryposis and an unknow neuromuscular disease. Her biological parents could not keep her, for they were going back to China. We have permanent guardianship. When Estie was 6 months old she had partial lung collapse and was on a ventilator for a month. The doctors said she had SMA (Spinal Muscular Atrophy) and told us to take her home. We had to do a lot of fighting and praying. One of the doctors agreed with us to have her Trached.

Andrew Hall

Andrew Hall — Mon, 21 Apr 2008 15:10:07 -0400

Andrew Keigan Hall

Diagnosis: Tracheostomy, Mic-Key button, Apnea, Arthrogryposis Multiplex Cognitia (AMC), Vocal Cord Paralysis, 2 Dislocated hips from birth, Broken knee from birth, Rocker Bottom feet, Hypospadias, High Arched Palate, Large Anterior Fontanelle, Clenched hands with 5th digit overlapping fingers, Gastroesophageal Reflux Disease, Multiple Congenital Anomalies, light seizures.