http://www.trachkids.org/medical-conditions/acampomelic-campomelic-dysplasia View Categorized TrachKid Profiles. en http://www.trachkids.org/members/345 <div class="trachkid-profile"> <span class="portrait" style="float:left;margin:0 0.5em 0.5em 0"><a href="/members/345"><img src="http://www.trachkids.org/files/imagecache/UserImage_Icon/files/portraits/ellie.jpg" alt="ellie.jpg" title="ellie.jpg" /></a></span> <p>Ellie May Noon</p> <p> Ellie was born 16th March 2001.&nbsp; Ellie has had a tracheostomy for nearly 8 months now and is coping brilliantly.&nbsp; Ellie was born with Pierre Robin Sequence / Acampomelic Campomelic Dysplasia and for her first year of life she had a naso-pharyngeal airway. It was only on the 6th of June '03 that the hospital decided to perform a trachy and it has made a huge difference to Ellie. </p> <p> Diane Noon</p> <p> <a href="mailto:diane.noon@ntlworld.com" rel="nofollow">diane.noon@ntlworld.com</a></p> </div> http://www.trachkids.org/members/345#comments Female Europe Acampomelic Campomelic Dysplasia Pierre Robin Sequence Sun, 01 Jun 2008 17:34:38 -0400 Ellie Noon 350 at http://www.trachkids.org