Central Congenital Hypoventilation Syndrome

mom2micah

mom2micah — Sun, 09 May 2010 21:20:30 -0400

Micah is a smiling, talkative 18 month old with a clinical diagnosis of Central Congenital Hypoventilation Syndrome but does not have the genetic markers for it according to the first test run. He has had Neuroblastoma (found at 5 months), it was removed and has had No Evidence of the Disease since April 27th, 2009. He also struggles with swallowing liquids and has all his liquids thic

babyadrianna

babyadrianna — Sun, 28 Feb 2010 17:17:07 -0500

Hi my name is Adrianna Jenae Nicole. i was born on Jan 28, 2010. My mommy had to have a c section because her bones were to small to push me out. After being in labor for 11 1/2 hours she finally had me. When i came out my mommy i wasn't crying becuase i had some of my poop in my throat and i also swolled some liquids in my mommy when they were pulling me out of her.

Maryana

taymary — Wed, 20 Jan 2010 12:59:18 -0500

Muhammad Sodiq s/o Saajid

linda-sodiq — Sun, 02 Aug 2009 19:36:59 -0400

perihaven

perihaven — Wed, 01 Jul 2009 19:04:10 -0400

Happy 8 yr old in second grade. I can be the most stubborn thing there is but it also makes me the strongest little girl in the world. I have a older sister in college and a two chihuahua's named KING KONG and MOCHA. Would love to hear from you!

Carmen Does

carmensmom — Wed, 27 Aug 2008 09:40:02 -0400

Caleb Nelson

Caleb Nelson — Thu, 05 Jun 2008 16:50:27 -0400

This is Caleb Grant Nelson. He was born full term on August 26,2002.When Caleb was three weeks old he suddenly had respiratory arrest at home. He was placed on life support at Cottage Hospital and flown to Dartmouth Hitchcock Hospital to the Pediatric Intensive Care Unit . Caleb remained on life support for two weeks. During this time it was discovered that Caleb had vocal cord paralysis, adrenal insufficiency, pulmonary hypertension, possible seizure disorder, acid reflux, and constipation concerns.

Donovan Hill

Donovan Hill — Tue, 03 Jun 2008 14:28:24 -0400

Donovan Hill

Hannah Stempfel

Hannah Stempfel — Sun, 01 Jun 2008 17:45:10 -0400

Hannah Stempfel

Hannah was born on 12/5/2000 at St. Johns Mercy Medical Center in St. Louis Missouri by means of a C-section. My pregnancy was very normal with no complications. Immediately after birth, Hannah was given some oxygen and was rushed away to the NICU. What I did not know, was that this was the beginning of our nightmare.

Abigail MacMillan

Abigail MacMillan — Sun, 25 May 2008 14:17:07 -0400

Abigail MacMillan

Hi, This is my beautiful daughter Abigail. She was born on February 3, 2001.