Blind

Patrick Huss

Patrick Huss — Wed, 14 May 2008 14:45:37 -0400

Patrick William Huss was born on September 17, 1999. He was a 26 week preemie. He was diagnosed with Myotubular Myopathy at birth. He came home after spending 3 1/2 months in the hospital, he just had oxygen and nasal cannula. Patrick was diagnosed with R.O.P. (premature retinas) he had several laser surgeries to try to correct the retinas and didn't succeed, which has caused him to be blind. He had the G-tube and nissen surgeries. He also had a perferation in the large intestine that was corrected.

Eileen Valentine

Eileen Valentine — Wed, 30 Apr 2008 16:56:19 -0400

My daughter Eileen Kaitlan Valentine was born on June 18, 2000. She was 34 weeks. Eileen was born with CHARGE Syndrome. She has Bilateral macular colobomas ( she is blind), Thickened bicuspid aortic valve, heart murmur, bilateral choanoe atresia (has stents in both nostrals), already experiencing developmental delays, her inner ears are deformed causing her to be deaf, mild facial palsy, swollowing problems, bad reflux, g-tube, full fundo wrap, sleep apnea, tracheomalacia, laryngomalacia, and now a tracheostomy.

Cassie Montoya

Cassie Montoya — Sun, 13 Apr 2008 19:02:52 -0400

This is my daughter Cassie. She was born at 29 weeks. She suffered severe brain damage. She has PVL, cerebral palsy, is blind, has a Trach and G-Tube, has asthma, reflux, multiple seizure types, and of course, severe developmental delays. She has had recent hip surgery to relocate her hips, she has a medi-port central line that helps tremendously. The trach is pretty recent as of October 31st two years ago.

She has lived a reasonably good life despite all these complications. She is now turning 8 years old. Every year is a miracle with her!!