Deaf

rob_patience

rpb_patience — Sun, 25 Jan 2009 16:53:38 -0500

Ezra was born March 22, 2005 Reading his conditions you can see that with all the other angels on this site he was given a run for his money. Today Ezra is an active 3 1/2 year old little man with the attitude of a 3 1/2 year old. Considering all his battles Ezra is doing well, his prognosis remains guarded but we are optimistic that he will continue getting stronger w

Peyton Smith

Peytons parents — Mon, 16 Jun 2008 14:10:59 -0400

Peyton was born 8/27/07 via emergency c-section. She was immeadiately transferred to UC Davis Medical Center and spent the next six weeks in the NICU. She came home with a g tube and trach due to her micrognathia. Peyton has had two jaw distractions - one in 6/08 and the second in 1/11. She has several other surgeries to complete before a potential decannulation.

Benjamin Orton

Benjamin Orton — Thu, 05 Jun 2008 19:33:01 -0400

Benjamin Orton was born on April 4, 2002 in Laconia, NH. He was born with a lot of problems, the most significant being "severe microcephaly" and "chondrodysplasia punctata". Basically in a nutshell his brain did not develop in utero. Because of Ben's brain, he will never walk, talk or do any of the other things that his brother and sister's can do. He also has hyperthryoidism, seizure disorder, hyper and hypo tonia, is blind and significantly deaf, has g-tube, a fundoplication done and a trach.

Tyler James Matthew

Tyler Matthew — Thu, 05 Jun 2008 18:31:22 -0400

Our son, Tyler James Matthew, was born to us on August 2, 2004. He was one week late and was an induced delivery that ended in an emergency c-section. The moment they placed him on my chest, I knew he wasn't breathing deep breaths. He seemed to be struggling...as though he were drowning. They suctioned and suctioned with no relief. For the next 2.5 weeks we spent time in our birth hospitals NICU. The entire time the doctors/nurses tried to diagnose him...forgetting to 'treat' his presenting problem. His breathing. For 17 days he underwent test after test while struggling to breath.

Sierra

Sierra — Sun, 01 Jun 2008 19:02:19 -0400

Sierra was born on November 28, 2000. She is my second child, she has an older brother Ryan. We had decided to be induced after we found out that Sierra had Craniosynostosis (where the sutures in her head closed too early). Being induced turned out to be a good thing, we had a team of doctors and nurses ready to take care of Sierra the minute she was born.

Isaac Wilson

Isaac Wilson — Sun, 01 Jun 2008 16:13:20 -0400

Isaac George Wilson

On the 19th February 2003 I gave birth at home to Isaac George Wilson. He came very quickly into the world after a 2-hour labour weighing a hefty 8lb 4oz. Immediately it was clear that he had breathing difficulties. Luckily for me I wasn't wearing my glasses so I couldn't see his frightening blue colour. An ambulance was called and Isaac was whisked to neo natal intensive care where he was ventilated, as he still was unable to breath himself.

Kellirae Cox

Kellirae Cox — Wed, 14 May 2008 15:25:03 -0400

My daughters name is Kellirae she was born August 18, 2001. She has been diagnosed with stickler syndrome. She was born completely deaf, has a grade two heart murmur, has tracheomalacia and laryngomalacia, has severe reflux, She also has an recessed chin and wide set eyes. She spent her first five weeks of life in NICU. While there we were unable to get her to eat so at six weeks she had a G-tube put in. At four months old after two episodes of respiratory failure she was given a trach. Two weeks later she was given a nissen fundoplication.

Eileen Valentine

Eileen Valentine — Wed, 30 Apr 2008 16:56:19 -0400

My daughter Eileen Kaitlan Valentine was born on June 18, 2000. She was 34 weeks. Eileen was born with CHARGE Syndrome. She has Bilateral macular colobomas ( she is blind), Thickened bicuspid aortic valve, heart murmur, bilateral choanoe atresia (has stents in both nostrals), already experiencing developmental delays, her inner ears are deformed causing her to be deaf, mild facial palsy, swollowing problems, bad reflux, g-tube, full fundo wrap, sleep apnea, tracheomalacia, laryngomalacia, and now a tracheostomy.

Jack Rogers

Jack Rogers — Tue, 29 Apr 2008 07:33:15 -0400

Jack Davis Rogers and his brother Dylan were born in Brisbane on the 14th of September 1993. Dylan's membrane had ruptured at 17 weeks gestation and the doctors told me I would loose both babies however I held on for 8 weeks and they were born at 25weeks. Jack weighed 830 grams and Dylan weighed 760 grams. Jack had a brain hemorrhage on Day 1 which has resulted in mild quadriplegic cerebral palsy. On day 7 he had patent duct operation on his heart and remained in ICU for 10 weeks. Dylan unfortunately died on day 20 from multiple pneumothoraxes (holes in his lungs).

Gillian Painter

Gillian Painter — Sun, 20 Apr 2008 18:17:12 -0400

Gillian Rae Painter