Gaven Simpson-Goddard

TrachKid Profile

Hello our names are Jamie Simpson and Michael Goddard. On May 28,2009 our son Gaven David was born. Gaven was 5 pounds and 5 ounce and 18 inches long. Gaven seemed to be a healthy little boy born only 19 days early. I was so exited for this is my 1st child. The next day approx. 24 hrs after he was born he was flown out to a hospital in St. Louis Mo. He was having a hard time breathing and everything coming back up. For the next 2 days his father and grandmother stayed by his side for I was still in the hospital. I was released May 31. Once I arrived I found out Gavens esophagus didnt grow together, Tracheal Esophagela Fistula, and would be having surgery in a few days. We were also told that they didnt know if the surgery would be done in one surgery or a few for they wouldnt be able to tell how far the seperation was til they went in.
On June 4th,  week old, Gaven went down for his 1st surgery for the repair. Approx. 1 1/2 to 2 hrs later they called up to say the surgery was done but didnt say if it was fixed or not. About 10 minutes later one of the surgens come up with a straight face were to couldnt tell one way or the other how the surgery went. My heart dropped and I started bawling. Then he told us it was fixed that the seperation was only a centameter apart. It would be 10 to 14 days before they would be able to check for healing. During that time Gaven was not able to be held . This was very hard on me for I had only held him maybe a handful of times since he was born.
So approx. 12days later they checked for leakage and there was some. They said it was a pin sized hole and with in the next week it should be completely healed. They had put a pickline in his little head to give him his TPN. Once they did the next next check about a week later it was healed enough so they could start him on milk threw a tube that went in his nose down to the stomach. In which he has gone threw 2 tubes for he seems to like pulling it out.
Well everything seemed to be going ok but when Gaven was laying on his back he would drop his stats. For after the 1st surgery he slept on his back all the time and after it was healed they decided to start putting him on his back. Well to figure out the d-stating he was doing they did a scope procedure to find out that he had Trachial Malasia, slacking in the airway and it was pretty bad. So on June 29th he went in for his 2nd surgery to have a Trach put in. Surgery went good.
We were praying things would go forward from this point on after the 2nd surgery. Since then it has been up and down with stuff. Gaven ended up wit h a staph infection in his trach. He got a 7day treatment for the infection. They had to switch formula he was on for the 1st kind he wasnt digesting it. Now the kind he is taking now it is being digested better. He started with a size 3 trach and they had to go up to a 3.5. But still d-stating, they did another test and found out the trach wasnt long enough to reach to the end of the Tracheal Malasia. So now they are special ordering his trach. also they started nippling him once a day. In which thats where they try to give him a bottle. For  Gaven didnt have his sucking and swallowing cordenated. A week and half  later after find out he had problems with the swallowing and sucking he was able to from them working with him. He is up to 2 times a day now tring to get him to eat from a bottle. Still has his nose tube for food.
The other day when we were in to see him they told us they are waiting for the special order trach to come in and once in they believe it will help him with his d-stating and all that and also easier for him to take abottle. So now its a waiting game still to get him off the ventaltor and feed from a bottle and he can possible come home.

This has been a tramadic experence for me. Fo this is my 1st child and about a week and half after having him I found out I had a staph infection and couldnt stay by his side 24-7 like I wanted to for I have treatments for 6 weeks 2 times aday 7 days a week with an iv that I gave myself and also still to this day have a nurse coming to the house to do my dressing. It was 3 times a week they come now its 2 times for I do it myself  now. So yeah I thank God for giving me the strength to deal with this all and for everyone who has been there for us  and continue to be. I will be back often to give updates on Gavens condition and hopefully good news that he is coming home. Thank you for taking time and reading my story.

Sept. 1, 2009
Today I received a very much needed phone call from the hospital. It was the discharge nurse telling me it was time for the training so Gaven could come home! It was the most exciting news I have heard in some time!!! He will be coming home on a ventolator for a little while. In which I am just greatfull that he is coming home. About 2 wks ago he was given a g-tube for he isnt taking a bottle yet. He dont have his suck and swallow down but here lately there are signs he maybe able to do it.  So 2morrow they are doing another swallow test on him. Now his father and I have to finish up training that we need for him to come home! They are saying the week of Sept. 14 he should be home and we are hoping nothing changes. In which I have faith that it will all go ok! God has been on our side the whole way and helped us all threw this time of need. I just wanted to up date our little mans news!!

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