TrachKids.org

TrachKid Profile

LAYSA WAS BORN AT 25WEEK GEST. DUE TO PREEACLAMPSIA. SHE WEIGHED 1LB. 6OZ. 11 1/2 INCH. SHE WAS BORN WITH A PDA THAT CLOSED WITH MED. SHE FOUGHT A HARD BATTLE WITH INFECTIONS  AFTERINFECTION.AT THREE MONTHS SHE HAD SURGERY TO CORRECT ROP.TWO WEEKS  LATER SHE DEVELOPED STRIDER AND WAS TRACHED.SHE STAYED IN THE NICU FOR 210 DAYS.AFTER BEING HOME FOR TEN DAYS WE WERE HOSPITALIZED AGAIN TO GET A G-TUBE AND NISSEN FUNDOPLICATION. THREE MONTHS LATER LAYSA STARTED GAGGING AND RETCHING SEVERLY .SHE BEGAN TO TAKE HER BOTTLE LESS AND LESS UNTIL SHE STOPPED ALL TOGETHER. LATER SHE HAD SURGERY TO REPAIR HER NISSEN AND HIATIAL HERNIA SHE ALSO HAD A PROCEDURE CALLED PYLOROPLASTY.WE HAD A GOOD THREE MONTHS WITH LITTLE OR NO GAGGING. THEN BACK TO SURGERY TO REPAIR ANOTHER HERNIA.TWO MONTHS LATER BACK IN SURGERY WITH A 100% UNDONE NISSEN,HERNIA,LIVER AND COLON MATTED TOGERTHER. SEVERAL MONTHS LATER WE WERE HOSPITALIZED TWICE FOR ASPIRATION PNEUMONIA. WITH THE VENT. SITTING IN THE CORNER IN THE PICU I KNEW  IT WAS UP TO ME TO GET HELP FOR MY DAUGHTER FOR SHE COULDN'T KEEP GOING THROUGH SURGERY AFTER SURGERY. THATS WHEN I FOUND DR.ROBBIN COTTEN,DR.KAUL,DR.WOOD,DR.GARCIA,AND DR.PINTUCK ANT CINN.CHILDREN MEDICAL CENTER. IN CINN.OH. AFTER SEVERAL VISITS WE ARE NOW G-J FED AND ONLY GAG AND RETCH WHEN WE HAVE A COLD I HAVEN'T FIGURED IT OUT YET! BUT, ITS DUE TO A SORE THROAT OR SINUS OR A COMBINATION OF BOTH. SO FAR THE ONLY SURGERY WE'VE HAD IS A DROOL PROCEDURE TO HELP WITH  THE ASPIRATION. AND ARE NOW WALKING.WE ARE TO TRAVEL BACK  TO CINN. IN APRIL AND HOPE TO HEAR THAT THEY CAN NOW START TO WORK ON HER AIRWAYS. ISN'T GOD GOOD!!

• Gender: Female
• Demographic Region: North America
• Siblings: None
• Medical Conditions: Laryngomalacia, Subglottic Stenosis, G-Tube, tracheobronchomalacia, oral adversion
• Ethnicity: AFRICAN AMERICAN

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3 years 9 weeks

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United States

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Mississippi