My sweet little man passed away on 11-19-09
My dear little man passed away in my arms on 11-19-09. I miss him dearly. His trach got clogged due to rsv while we were all asleep. they brought his heart back but he was on life support for the breathing. and he never woke up. His brain was too severely damaged.
My son just had his trach placed last saturday. I am so scared of the trach its weird. All the other things we have dealt with have been nothing compared to this. I am not sure how to handle it. I feel bad that he is in so much pain, and then I look at him and he has a smile ear to ear. i guess i am the one who is really acheing. I want him to be ok, and to be able to have as full of a life as possible. I want him HOME more than anything
| Title | Poster | Replies | Updated |
|---|---|---|---|
| I am new | owiesmomma | 1 | 2 years 10 weeks ago |
| RIP OWIE | owiesmomma | 3 | 2 years 10 weeks ago |
So very sorry about you loss...what an heart wrenching thing to have to go through....and no one should have to feel that pain. Prayers for your peace.....

smiles and HOME
My heart breaks for the pain you must feel. But please try not to feel so sad and bewildered. My feeling is that trachs are easy - it is not being able to breathe thst's hard! It won't be long before you'll be a pro and the trach will seem natural. I've had many years of parenting and working with kids with trachs . Each family handled it differently - but each family DID handle it!
Write often, ask questions; pretty soon you'll be GIVING the support!
Blessings to you all,
Nancy
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