TrachKids.org

Hi everyone, i just wanted to  stop by and let yall know that alexanxder was decannulated this morning here at vanderbilt. He is doing grrreat!!   His sats have been higher than 96% his ♥ rate has been normal hopefully we are getting to go home tomorrow!! the only thing he has had has been a feve but the doctors said that was normal since he did has surgery to remove his adnoids and some scar tissue=]

Ok so alex will be going into surgery on monday april 11 at 7:30am at Vanderbilt for the removal of his adnoids=] hopefully by the next day he's swelling is gone and then the doctors are going to try to decannulate! HOW EXCITING BUT SCARY umm...its a very weird feeling. but i have to show him i am smileling even though i might be afraid but i will have to prove to him that mommy can be strong as he is.
Please keep alex in your prayers=] thanks everyone and i will post after we come home from the hospital or if anything changes.

So i recieved a call yesterday from the team, ent, pulmonary,and digiestive doctors. They lady said we have alexander scheduled for a removal of the adnoids!...and a deccanulation...omg...I didnt know what to say! I was happy but anxious at the same time, its like it dosent bother us if he were to keep his trach in for a few more time. So it official April 11 we go in for a adnoid removal and the next day we are going to try  to DECCANULATE! As all of you all know alex is 2 years old, i didnt think he could understant but i tryed to explain what was coming. I said Alex in a couple of moths the dr. is going to take your trach out and we are going to say bye bye to your trach... He said (Mo)as in No! i said why not? he ran into the living room and cryed out loud and covered his trach and said MO MAMI!!! I STARTED TO CRY IT WAS SO SAD JUST TO WATCH HIM CRY, and to know his trach is a part of him...=( but hopefully the decanulation will turn out fine. Please keep alex in your prayers♥ thanks and god bless... and remember miracles do happen you just have to be patient and wait for them

So alexander went into the OR for an evaluation for a future decannulation. Before the drs took alex i ask if there were any chances that alex had made an amazing progress. I asked what they thought from the outside point of view....They said we dont think so but there is always a chance...so they took him back, an hr later the drs came out it was the pulmonary and ent. they came out with HUGE smiles on thir faces,but yall know how us moms are, we panic at everything...they asked if we could go into a private room, so we did, they we like, WE WERE VERY SUPRISED AT WHAT WE SAW IN ALEXANDER, WE NEVER THOUGHT THERE COULD BE A CHANCE FOR A DECANNULATION,HE HAD BEEN SO BAD IN THE PAST, BUT HIS LUNGS LOOK GREAT the pulmonary dr stated, the ENT said even though his trachea is still just a bit small but there are no more sighns of the trachobroncolmalacia!=] it was the appiest day ever...well then the decision making for the decannulation came, we decided in decannulating in march or april,we want the winter and all the flu season to pass and then we will GO FOR IT!!!!!!! miracles do happen you just have to believe and be patient=]♥

hey everyone well we were scheduled for an or visit on nov 1 but the dr canceld it=[ now we are going on monday the 22 of nov...i super excited bc alex is doing great and we are going in for an evaluation for a future decannulation=]