TrachKids.org

TrachKid Profile

Micah is a smiling, talkative 18 month old with a clinical diagnosis of Central Congenital Hypoventilation Syndrome but does not have the genetic markers for it according to the first test run.  He has had Neuroblastoma (found at 5 months), it was removed and has had No Evidence of the Disease since April 27th, 2009.  He also struggles with swallowing liquids and has all his liquids thickened.  We have recently noticed that he doesn't chew ANYTHING either, just swallows it whole.  Micah also struggles with silent reflux with aspiration.  We are still on a journey figuring everything out with him.  

• Gender: Male
• Demographic Region: North America
• Siblings: One
• Medical Conditions: Reflux, Central Congenital Hypoventilation Syndrome, Swallowing Dsyfuntion, Neuroblastoma, Horners Syndrome

History

Blog

View recent blog entries

Member for

1 year 39 weeks

Location

Country

United States

State/Province

Minnesota