mjmom
TrachKid Profile
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MARLON WAS BORN NOVEMBER 1,2008 2LB1OZ HE WAS DIAGNOSEDWITH A SMALL HEART MURMUR AND IN PERFECT CONDITION BESIDES RESTRICTED GROWTH.AFTER BEINNG TAKEN OFF OXYGEN.AND REGULAR NASAL CANNUL .HE HAD GAINNED WEIGHT AND WAS 3LB 4OZ.HE BEGAN TO BREATH HARD AND FAST.SO THEY IMMEDIATLY PUT HIM ON C-PAP.AFTER BING ON C-PAP FOR ABOUT A MONTH HIS WEIGHT BECAME GREATER.HE WAS TO MUCH FOR THE C-PAP.HE REQUIRED SO MUCH OXYGEN.THEY CLAIMED THEY DIDNT KNOW WHAT THE PROBLEM WAS.SO HE WENT TO THE VENTILATOR TO GIBVE HIM MORE SUPPORT.ON CHRISTMAS DAY 2008.WHICH WAS TO BE BORN.AND THEY CALLED ME TO THE NICU ON NEW YEARS EVE AND SAID THERE WAS NOTTING ELSE TO BE DONE.HE WAS ON 100 PERCENT OXYGEN.AND HIGH AS THEY CAN TAKE THE VENTILATOR. THEY CALLED A LUNG PULMONARY DOCTOR IN AND SHE RECOMMENDED THEY SEND HIM TO CHILDREN .IT WAS HIS ONLY HOPE .TO TRY NITRIC OXYGEN.SO WHEN I GOT THERE WE SIGN TRANSPORT PAPERS SENT HIM OVER TO CHILDREN HOSPITAL.I WAS SO TERRIFIED,SCARED.EVERYONE AT CHILDREN WERE SO CALM.AND ASSURED ME HE WAS GOING TO BE OK.NOT 5 HOURS LATER HE WAS DOWN TO 50 OXYGEN.I WAS SO HAPPY TO SEE 50 THEY ASSURED ME WE HAD A LONG WAY TO GO.ITS BEEN 2 MONTHS NOW HE DOING GOOD. BUT INBETWEEN WE HAD SOME BACK STEPPING. WHEN HE GET TO 30%HE WOULD START DESTATING.THEY SAID HIS LUNGS WERE UNDER DEVELOPED. AND HE HAD CHRONIC LUNG DISEASE.AND SOME SCARRING FROM VENTILATOR.SO THEY TRIED EXABATING HIM ONCE.AND IT DIDNT WORK.WE DECIDED TO DO THE TRACH.MARCH 09.HES BEEN DOING WELL DOWN IN OXYGEN REQUIRE LOW 25-30.AS OF TODAY.IM JUST STARTING TO WATCH DAILY TRACH CLEANING.AND LOOKING FORWARD TO THE DAY MY MJ CAN COME HOME.BEING HES 4 MONTHS AND NEVER BEEN HOME.
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