TrachKids.org

TrachKid Profile

Ally is a 9 year old full of life,love and plenty of energy. Ally was born 13wks early weighing in at 1pd 8oz and 12.5in long. God chose me to be mommy to a wonderful little girl. Even thoe life tries to get her down she goes on like nothing has ever happend. She had the normal problems most preemies have she just likes to add to things. My son to was preemie so I always say she has to outdo him on everything, She is winning by far. Ally first surgery on her airway was when she was 3months old, reflux and the ventilator caused granuloma tissue to form. They went in hoping to remove it and all would be fine, she would be off the vent and on her way home. But she had other plans the surgery failed, so they decided a cricoid split was necessary. It worked my baby came home after 4months and 1 week in the Uk hospital NICU. I was so excited and scared all at the same time.
She went home with a G-Tube, oxygen, and monitors. Over the next 3yrs she was in and out of the hospital with numerous problems, but she prevailed and kept on beating the odds.
When she was 4 she stopped growing , couldn't gain weight, and started turning blue when she played. So off to the ENT we go. They then diagnosed her with Grade 1 Subglottic Stenosis(SGS). Not long after that she was back in the O.R having another Cricoid Split but this time they added the trach. After 6 months they decided she could be decannulated. She started gaining weight and was able to play with no blue lips. Over the next few years she had to have several minor surgeries on her airway to keep scar tissue at bay, they removed tonsils, adnoids whatever would block her airway. But in 2007 we were told her SGS was now grade 3. By this time her heart, lungs, body just couln't take anymore so in Febuary 2008 they put the trach back in. We are now waiting for her to gain some weight and get strong enough for her 3rd cricoid split. So far she has gained 3pd and grew 4in. Thats the most she has ever grown in a year. She never complains,never takes medicine when she has surgery, she is so brave. I know I could never be as strong as her,Ally is my angel, my little hero.

• Gender: Female
• Demographic Region: North America
• Siblings: Three
• Medical Conditions: Reflux, Subglottic Stenosis, Preemie, vocal cord paralysis, nissen fundoplication
• Ethnicity: white

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Member for

3 years 33 weeks

Location

Country

United States

State/Province

Kentucky