TrachKids.org

TrachKid Profile

Zade was born with the majority of his diagnosis'. He had his first surgery to repair his back on 10/20/09. He did excellent and only had to stay a total of 10 days in the NICU. He was breathing, eating and doing so well. He was home just a couple of weeks, then when he was 4 weeks old we had went to Spina Bifida Clinic and we got sent to the ER to have an emergency VP Shunt placed. He also did very well and went home the next day. We had thanksgiving and Christmas as usual....his back incision and head and tummy incisions were healing very good. We now thought that we would only have to watch him for shunt malfunction signs and start our journey to motor abilities and function for life. Well we were sure wrong shortly after Christmas 2009 12/28/09 Zade was turning blue while he was eating and so we were just going to take him to the hospital but when we went to put him in his car seat he was turning more blue so we called 911 and went to the hospital that way ( I knew he needed oxygen, but we did not have any at home...he had never had any breathing difficulties) so we stayed in the hospital overnight and the next day they were just gonna run a series of test on Zade...but when Dr. Scalf came in his ENT he said that with Zade and his bi-lateral vocal cord paralysis the only option would be to give him a tracheostomy...so he got an emergency(kind-of) tracheostomy. We stayed in the hospital until January 7, 2010. It was a longer stay than when he was in the NICU!! He is doing very well with his trach. he is very well adjusted to it. With ALL things Zade he always amazes everyone at how well he does with EVERYTHING!! He is one tough and determined little boy! Now we go on March 16, 2010 to see Dr. Scalf to test Zade out with a Passy Muir Valve :) Yeah can't wait to hear my little Zade's voice. It has bee WAY TOO long!!

• Gender: Male
• Demographic Region: North America
• Siblings: One
• Medical Conditions: Laryngomalacia, vocal cord paralysis, Hydrocephalus, GERD, Central Apnea, hydronephrosis, Myelomeningocele Spina Bifida, Arnold Chiari II Malformation, Vesico-ureteral reflux, Nodule Heterotopia

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1 year 49 weeks

Location

Country

United States

State/Province

Michigan