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TrachKid Profile

Jayden was born on March 12 2009. Shortly after arriving into the world Jayden stopped breathing, they gave him cpr and was able to revive him. He then went to the NICU in our local hospital. Once there Jayden was having issues with swallowing, which we already knew prior due to ultrasounds. They determined that he has a small chin that causes his tongue to reside in the back of the throat. They ended up giving him a feeding tube through his nose. They also noticed he has a heart mumur and after doing a echo on his heart he was than diagnosed with Tetrallogy of Fallout. The local hospital here decided Jayden needed much greater attention and was life flighted to Riley's Childrens Hospital in Indy. Once arriving there and going thru tons of testing they also came to notice other issues Jayden has. He has a coloboma in his left eye, reflux of the kidneys, severe acid reflux, missing a vertabra in his lower spinal column. He has surgery for his small chin on April 2, 2009, and also recieved the g-j tube. He recoverd from these surgery's fine and is set to get his distractors out in a couple weeks. On May 26th, 2009 he had his tracheostomy done due to his breathing issues getting worse. He has recoverd fine also from this surgery. On June 7th Jayden got real sick and the doctors weren't sure what was going to happen, we went up to be with our son and thanfully he is doing great now. As a result of getting sick when they did his echo on his heart they found another issue with it that needs correction right away. So in July he will be having his open heart surgery. Jayden has two sisters Mackenzie(5) and Makayla(2.5) and a brother that passed away in 2005 Cory. He has yet been able to meet his sister due to the rules in the nicu. Hopefully they will be raising the alert for RSV season and let the girls go back and see their brother. 

• Gender: Male
• Demographic Region: North America
• Siblings: Three
• Medical Conditions: Laryngomalacia, Reflux, nissen fundoplication, Pierre Robin Syndrome, Tetralogy of Fallot, GJ-Tube, hydronephrosis, vesicoureteral reflux, syringohydromelia, pharyngomalacia
• Ethnicity: white

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2 years 36 weeks

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United States

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Indiana