This is my son Gary Xavier Stadler. He is 2 Years old with a tracheotomy. He is on a ventilator on a control assist setting. He has a rare condition called Campomelic Dysplasia. He also has tracheomalacia and bronchomalacia, kyphoscoliosis and a bell shaped chest.
Hi my daughter Jasmine has the same diagnoses..she is 2 1/2 years old and ive only met one person that has a daughter who is 26 years old and has the same thing..would love to get to know you and your son gary ..Id love to just have a converstation about our kids together just to learn from each other ..Jasmine doesn't sit up on her own or hold her head up but she does roll from side to side..she also is vent dependent ,also has a feeding tube...my email is palmtrees_amy@yahoo.com my name is amy ,im knew to this so not sure how to go about meeting new familes..thanks amy
HI
Hi my daughter Jasmine has the same diagnoses..she is 2 1/2 years old and ive only met one person that has a daughter who is 26 years old and has the same thing..would love to get to know you and your son gary ..Id love to just have a converstation about our kids together just to learn from each other ..Jasmine doesn't sit up on her own or hold her head up but she does roll from side to side..she also is vent dependent ,also has a feeding tube...my email is palmtrees_amy@yahoo.com my name is amy ,im knew to this so not sure how to go about meeting new familes..thanks amy