Sophie
TrachKid Profile
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Sophie was born on October 20, 2008 at 32 wks gestation via emergency c-section. She was prediagnosed in utero with Down Syndrome and a heart defect. Sophie spent the first 3 months of her life in the NICU at Children's Hospital of Philadelphia. During that time she overcame numerous odds and received several surgical procedures, including a G-tube Nissen and PDA ligation. She came home initially on 1/8th L of oxygen. After spending nearly 3 precious months home with her, in April '09 we went back up to CHOP for surgery to repair her congential atrioventricular heart defect. The surgery was deemed a success despite the fact that her tissue was like "swiss cheese" (and she requires another heart surgery in the coming years). Following her surgery, we began to run into some problems- one major issue being that the doctors were not able to successfully extubate her. We spent five more LONG months in the hospital which resulted in Sophie receiving a trachestomy (venilator dependent). Sophie is home now and doing well. I still don't quite understand how we got to this point. But I do know that Sophie is a VERY strong little girl! She is our miracle baby. Despite all the life changing obstacles we have had to overcome I have more love for her than I ever thought possible and wouldn't change a thing about her.
History
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- Member for
- 2 years 2 weeks
Location
- Country
- United States
- State/Province
- Virginia
Smile!
Hi - My name is Nancy. I had a daughter and now have a grandaughter w/ trach plus (between the two of them) many, many diagnostic disabilities. But in spite of it all their smiles are outstanding! That's what I thought of when I saw your daughter's picture! I can tell that you are having fun!