April 27, 2008 our Gorgeous Emily Arrived 24 wks premature. After a tough year of an intense Roller Coaster ride through several different NICU's. As of January 2009 our Emily came home along with a tracheotomy tube, Vent, And G-Tube along with all the medical equipment that entails. Emily was Diagnosed with CLD, Gerd and Subglottic stenosis. Late September 2010 Emily's ENT Surgeon DR. K. Geller had stated he will be retiring, therefore I sought Out a second opinion at CHOC with Dr Camilon And we were unsatisfied with the level of care he provided. After several months of searching for an ENT to take over my daughter's case we have found success with Stanford . July 2011 Dr. Cheng at Stanford evaluated our daughter case and currently is scheduled to have a scope done September 9 2011 with a possibility of being decanulated. If there is scar tissue behind the vocal chords then she will need an LTP and if not then Dr. Cheng plans on lasering the stenosis. Please keep My Emily in your good thought's and prayers. - Audrey
Emily' Special Date's
June 2009 Emily said Goodbye to Home Vent
May 2011 Emily said Goodbye to her G- Tube
Hi Im looking for feedback My daughter may be decanulated at Stanford And may possibly have her stenosis laser if there is no scar tissue behind her vocal chords, if any one has been through this experience or similar I would love feed back especially if you have any experience with stanford ENT would be great - Audrey
| Title | Poster | Replies | Updated |
|---|---|---|---|
| Looking for feedback | Audrey024 | 0 | 36 weeks 4 days ago |
