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AubreyM
TrachKid Profile
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Aubrey arrived on June 27, 2009. I had been in labor for 21 hours. I knew as soon as my water broke there was mecconium. As soon as she was born she was taken away to be suctioned. It didn't work. She had to be intonated right away. After 10 days in the NICU and faster than we expected recovery we took her home. She always had "noisy breathing." Her first hospitalization was when she was 5 months old. She was diagnosed as having croup and laryngomalacia. She was hospitalized again two months later with pneumonia. At this point the doctors suspected stenosis. She was scheduled for a bronchoscopy but before the appointment she was in the hopital again. This time she had H1N1. After three days on a regular floor she had to be rushed to the ICU. Her respiratory rate was increasing significantly and her retractions were getting worse. After trying heliox, she had to be intubated. She had to be sedated to keep from pulling everything out. The ENT did a bronch but wanted to wait to remove the stenosis. Three days later he did another bronch and it had gotten worse. He came out of the operating room and told us that she would need a trach. I was devastated but had mentally prepared for that moment for a long time. After the tracheotomy she was on paralytics for days. To me that was the hard part. When she finally woke up she could finally breathe easily. She didn't even acknowledge the trach was there. It was a part of her now. It was very hard to see her not be able to talk. She was given a passy-muir within a few days and did well with it. After we took her home she did great. We recently moved to Las Vegas and have new doctors. She is scheduled for a bronchoscopy August 5. We are optimistic that the stenosis can be removed. We celebrated her first birthday a few weeks a ago. She has been such a fighter. She is very happy and loves to play. I am so thankful that she is here with us.
- Gender: Female
- Demographic Region: North America
- Siblings: None
- Medical Conditions: Laryngomalacia, Subglottic Stenosis, Meconium Aspiration at birth
History
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- Member for
- 22 weeks 4 days
Location
- Country
- United States
- State/Province
- Mississippi
