TrachKids.org

TrachKid Profile

The Amazing Ambrose was born January 19, 2008. He was born 6 1/2 weeks early, weighing 4 lbs. 1 oz. He had a rough start, spending 2 1/2 months in the Intensive Care Nursery. After more than a dozen episodes during which he stopped breathing, turned nearly black and needed several minutes of bagging to recussitate him, he wound up getting a trach. He had upper airway obstruction involving laryngomalacia and possibly other factors as well. His severe reflux led to a Nissen fundoplication and G-tube. He experienced transfusions, hyponatremia, seizure onset, bilateral hernia repair.

He has now been home for several months and apart from the ongoing oxygen requirement and seizures he has been doing well and staying out of the hospital. Hurray for Ambrose!

Ambrose and his big sister, Sophia now residing in Heaven, share the unfortunate distinction of being the only cases ever reported in the US of a terrible syndrome called Taybi-Linder. Please see her profile in the Memorials section under Sophia Carole Brown.

Ambrose is a strong and determined boy. He has amazed his doctors by beginning to crawl "combat style." Hopefully it is just the beginning of many abilities he will achieve. We are so proud of him, whatever his abilities may be.

Stay tuned as he writes his own story.

Here are two poems by Ambrose's Daddy:

Father's Joy

I hold in my hands
A fabulous creation
In no other land
Exists such sensation.

Not minding a clock
So early he came
Chip off the old block
Ambrose Brown is his name.

He stumped all the chumps
Defied experts with pride
He took lots of lumps
And took them in stride.

Now home we all bond
He eats, poops, and grows
His Mommy is fond
Of his cute button nose.

--James C. Brown

My Daughter My Son

A hardscrabble road
Lay before her in life
Her pure days consumed
With struggle and strife

Yet she forged her own way
Amassed loyal fans
She promised to stay
Off'ring forth both her hands

But God had a plan
For Sophia my sweet
In Hea'vn reserved her
A throne for a seat

Only four years of age
I was smitten by her charms
I Lost My Whole World
When she died in my arms

A year bore the scar
From whence my arms she was torn
Till the heralded day
When Ambrose was born

With much the same bias
His fortunes the same
Big sister parting waters
Stacking odds for his game

With luck, faith and courage
His soul shall endure
Guardian Angel Sophia
Stands sentinel at his door.

• Gender: Male
• Demographic Region: North America
• Siblings: One
• Medical Conditions: Laryngomalacia, Microcephally, Seizure disorder, G-Tube, Skeletal Dysplasia, Taybi-Linder Syndrome, hyponatremia, cardiac anomalies

History

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Member for

14 weeks 1 day

Location

Country

United States

State/Province

Vermont