Stella is my second daughter and was born with Pierre Robin syndrome, and Stickler Syndrome.
Trached since 4 weeks old, has osteopathia striata with cranial sclerosis
MaryJane is a healthy happy 23 month old now - trached at 2 months of age w/cleft palate/reflux
Wee cutie x!x
Cornelia de Lange Syndrome, Pierre Robin, Hemihypertrophy. Trached since 9/08, G-tube fed
Joshua had to have a trachi put in at 8 weeks after birth.