JOY! A terriffic smile and strong spirit throughout her many challenges.
vocal chord paralysis,epilepsey,movement disorder,developmental delay,dandy walker cyst
Cornelia de Lange Syndrome, Pierre Robin, Hemihypertrophy. Trached since 9/08, G-tube fed
Trached at 10 months
26-week preemie with tracheal stenosis, trached at 2 months, single-stage reconstruction at 2 1/2