Diagnosis List (All children have or have had a Tracheostomy)
- -1p13.1 chromosome deletion (1)
- 10 Q Deletion Syndrome (1)
- 2 VEPTR rods (1)
- 22q11 Genetic Microdeletion (2)
- 26 Week Preemie (1)
- ? septo optic dysplasia (1)
- Absent Pulmonary Valve (1)
- AC II malformation (2)
- Acampomelic Campomelic Dysplasia (1)
- Addison's Disease (1)
- Adnoid Cystic Carcinoma (1)
- adrenal insufficiency (1)
- Agenesis of the Corpus Callosum (1)
- Alobar Holoprosencephaly (1)
- Amputee (1)
- and multiple birth defects (1)
- Anemia (1)
- Angelman Syndrom (1)
- Anoxic brain injury (1)
- Anoxic Coma (1)
- Anoxic Encephalopathy (2)
- aortic valve disease (1)
- Apnea (5)
- Arnold Chiari II Malformation (1)
- arnold chiari malformation (1)
- Arteriovenous Malformation (1)
- Arthrogryposis Multiplex Congenita (3)
- aspiration (5)
- aspiration peumonia (1)
- Asthma (17)
- asymmetrical difference in sides of brain (1)
- Atresia of the Larynx (1)
- Atresia of the nasal choanae (1)
- Atrial Septal Defect (14)
- Atrioventricular Canal Defect (partial repair) (1)
- Attention Deficit Hyperactivity Disorder (1)
- Autism (3)
- Baclofen Pump (1)
- Beckwith Wiedemann Syndrome (4)
- Bell Shaped Chest (1)
- Bi-lateral vocal cord paralysis (1)
- Bilateral Choanoe Atresia (1)
- Bilateral Hemifacial Microsomia (2)
- Bilateral Hernea Repair (1)
- Bilateral Hip Dysplasia (1)
- Bilateral Inguinal Hernia (1)
- Bilateral mixed hearing loss (1)
- bilateral vocal cord palsy (1)
- Bilateral vocal cord paralysis (3)
- biliary atresia (1)
- Binder Syndrome (1)
- BiPAP (1)
- BIPAP ventilation (1)
- Blepharophimosis (1)
- Blepharophimosis sequence (1)
- Blind (3)
- Bone Marrow Transplantation (1)
- BPD (Bronchopulmonary dysplasia) (1)
- Brain Abnormalities (2)
- brain injury (1)
- Brain tumor (2)
- branchio-oto-renal syndrome (2)
- Breath Holding Spells (1)
- Bronchial Malasia (1)
- Bronchial Stenosis (1)
- Bronchiectasis (1)
- Bronchiolitis Obliterans with Organizing Pneumonia (1)
- bronchomalacia (21)
- Bronchopulmonary dysplasia (77)
- C-PAP (1)
- c4 butterfly vertabrae (1)
- Campomelic Dysplasia (2)
- Cancer (1)
- cardiac anomalies (2)
- Cardiac Arrests (1)
- Cardiac Defect (5)
- Carnitine Deficiency (2)
- Central Apnea (3)
- Central Congenital Hypoventilation Syndrome (13)
- central hypotonia (1)
- Central Line (1)
- Cerebral Palsy (38)
- Cerebral Thrombus (1)
- Cervical Teratoma (3)
- CHARGE Syndrome (4)
- Chemical burns (1)
- Chiari II Malformation (2)
- Choanal Atresia (4)
- Choanal Stenosis (2)
- Choledochal Cysts (1)
- Chondrodysplasia Punctata (1)
- Chromosomal Disorder (1)
- Chromosome 8p Inversion-Duplication with partial deletion (1)
- Chromosome 9 (1)
- Chronic Aspiration (3)
- Chronic BPD (1)
- Chronic Bronchitis (1)
- Chronic Lung Disease (32)
- chronic pancreatitis (1)
- Chronic respiratory failure (1)
- chronic respitory failure (1)
- cleft lip (5)
- cleft lip & palate (1)
- Cleft Palate (28)
- club foot (2)
- coarctation of the aorta (1)
- cochlear implant (1)
- Cogenital Cytomegalovirus (1)
- collapsed airway (1)
- Coloboma (2)
- Coma (3)
- Combine Immune Deficiency (1)
- Complete Heart Block (1)
- Complete Tracheal Rings (1)
- Compression of the left mainstem bronchus (1)
- Congenital Anomalies (6)
- Congenital Cricopharyngeal Achalasia (1)
- congenital disease (1)
- Congenital Heart Defect (3)
- Congenital Heart Disease (3)
- Congenital Hypothyroidism (1)
- Congenital Lobar Emphysema (1)
- Congenital Muscular Dystrophy (2)
- Congenital Myopathy (1)
- Congential Heart disease (1)
- Congestive Heart Failure (1)
- Contractures (1)
- Cornelia de Lange Syndrome (1)
- Cortical Atrophy (1)
- cortical dysplasia (1)
- cortical visual impairment (14)
- cortisol dependency (2)
- cranial nerve damage (1)
- Cranial Stenostosis (1)
- Craniosynostosis (6)
- Cricotracheal Resection (1)
- cross-fused ectopic kidney (1)
- Croup (1)
- Crouzon's Syndrome (1)
- Cystic Hygroma (3)
- Cystic Nephroma (1)
- Cytomegalovirus (3)
- damaged vocal cord (1)
- dandy walker cyst (1)
- Dandy Walker Malformation (1)
- Dandy-Walker syndrome (1)
- Deaf (11)
- deaf-blind (1)
- Deformed Epiglottis (1)
- Deformities of Airway & Esophagus (1)
- Deletion in Chromosome 1 q21-25 (1)
- Deletion in Chromosome 13 (1)
- Developmental Delay (28)
- Developmental Delays (1)
- Dextroversion (1)
- Diabetes Insipidus (3)
- Diaphragmatic Eventration (1)
- Diaphragmatic flutter (1)
- Diaphragmatic Hernia (6)
- DiGeorge Syndrome (2)
- Disagnathia (1)
- Double outlet right ventricle (2)
- Down Syndrome (17)
- Duane syndrome (1)
- Dumping Syndrome (1)
- duodenal atresia (3)
- Duodenum Inversum (1)
- Dwarfism (2)
- Dysphagia (4)
- Dysphasia (3)
- dysplasia (2)
- Dystoglycanopathy (1)
- Dystonia (1)
- Ear abnormalities (1)
- Ear Malformations (1)
- Eczema (1)
- Ellis-van Creveld Syndrome (1)
- Encephalitis (2)
- encephalopathy (5)
- Encephelocele (1)
- Enlarged Tongue (1)
- epstein's anomaly (1)
- Escobar Syndrome (1)
- Esophageal Atresia (15)
- Esophageal Stenosis (1)
- Esophageal Stricture (2)
- esotopia (1)
- Ewings Sarcoma of the C-6 neck vertebra (1)
- Exomphalos (1)
- extracorporeal membrane oxygenation (1)
- Failure to thrive (5)
- Familial multiple endocrine neoplasia (1)
- Fanconi Anemia (1)
- FAS (1)
- feeding disorder (1)
- Floppy Epiglottis (2)
- Freeman Sheldon Syndrome (1)
- fused fingers (1)
- Fused Vocal Cords (1)
- G-button (2)
- G-Tube (216)
- GERD (1)
- GJ-Tube (5)
- Glossoptosis (2)
- Glottic Web (1)
- GoldenHar Syndrome (5)
- granulation tissue (3)
- Granuloma (3)
- growth hormone deficiency (2)
- Hearing Impaired (3)
- Hearing Loss (14)
- Heart Murmur (1)
- Hemangioma (21)
- Hemihypertrophy (1)
- Hemiparesis (1)
- Hemophagocytic Lymphohistiocytosis (1)
- Hemosiderosis (1)
- hepataspleenamegaly (1)
- Hernia (2)
- high palate (1)
- hip dysplasia (2)
- Hydrocephalus (30)
- Hydrocephalus with VP shunt (1)
- hydronephrosis (2)
- hydronephrotic kidney (2)
- Hydrops Foetalis (1)
- hydrospadias (1)
- Hyper IGM Immune Disorder (2)
- hyperbilirubinemia (1)
- Hypertension (1)
- Hyperthryoidism (1)
- hypertonia (3)
- hypertrophic cardiomyopathy (2)
- Hypoglycemia (1)
- hyponatremia (1)
- Hypoparathyroidism (1)
- Hypopharangeal Dysfunction (1)
- Hypopitutarism (1)
- Hypoplastic Right Lung (2)
- hypospadius (1)
- Hypothyroidism (6)
- hypotonia (14)
- Hypoxic Encephalopathy (1)
- Hypoxic Ischemic Encephalopathy (6)
- I-cell Disease (1)
- immune deficiency (2)
- Imperforated Anus (2)
- Inadequate upper airways (1)
- Infantile Axonal Neuropathy (1)
- Infantile Spasms (3)
- Infarcts (1)
- Interarytenoid Fibrosis (1)
- Intestinal Malrotation (6)
- Intracranial Calcifications (1)
- Intrauterine Growth Restriction (4)
- Intraventricular Hemorrhage (13)
- Ishemic Encepholophy (1)
- IVC thrombus (1)
- J-tube (1)
- jaundice (1)
- jaw distraction (1)
- Jeunes Syndrome (1)
- JG-Tube (2)
- joint contractures (1)
- Joubert Syndrome (1)
- kidney defect (1)
- Kidney Disease (1)
- Klinefelters Syndrome (1)
- kyphoscoliosis (1)
- lagophthalmos (1)
- Laryngeal Atresia (2)
- Laryngeal Cleft (3)
- Laryngeal Cysts (1)
- Laryngeal Stenosis (1)
- laryngeal tracheal cleft III (1)
- Laryngeal Trauma (1)
- Laryngeal Web (6)
- Laryngomalacia (59)
- Laryngotracheal separation (1)
- Laryngotracheoesophageal Cleft (2)
- Laryngotracheomalacia (2)
- Laryngotracheoplasty (3)
- Left Diaphragmatic Eventration (1)
- Leigh's Disease (1)
- Leukemia (1)
- Lissencepahly (1)
- little person (1)
- Long Gap Esophageal Atresia (1)
- Lung Defect (1)
- lung disease (1)
- Lymphangioma (3)
- Lymphatic malformation (1)
- macrocephaly (1)
- macroglossia (4)
- Malrotation of Duodenum (1)
- Mandibular Distration (1)
- Meconium Aspiration (6)
- Meningitis (4)
- mental retardation (3)
- Metabolism disorder (1)
- methicillin-resistant staphylococcus aureus (2)
- Microcephaly (15)
- microcornea (1)
- Microgastria (2)
- Micrognathia (5)
- Micrognathia with Airway Obstruction (1)
- Micronathea (1)
- microtia (1)
- Misshaped Vocal Cords (1)
- Missing Kidney (1)
- missing tracheal rings (1)
- Mitochondrial Disease (1)
- mitochondrial mopathy (1)
- Moebius Syndrome (2)
- Monochorionic Twin (1)
- movement disorder (1)
- Multicystic Dysplactic Kidney (1)
- multiple congenital anomolies (1)
- Multiple Craniosynostois (1)
- multiply disabled (1)
- Myclonic Movements (1)
- Myelin Deficiency (1)
- Myelomeningocele (2)
- Myelomeningocele Spina Bifida (1)
- Myotubular Myopathy (4)
- Nager's Syndrome (1)
- narrow airway (1)
- Narrow Larynx (1)
- Nasalpharengeal stenosis (1)
- Necrotising Enterocolitis (3)
- Necrotizing Entero Colitis (1)
- Necrotizing Intercolotis (1)
- Nemaline Myopathy (1)
- Neurofibroma (1)
- Neurofibromatosis (4)
- neurogenic bladder (1)
- neurogenic bladder scoliosis (1)
- Neurological Injury in Surgery (1)
- NG-tube (5)
- Nissen Fondoplication (1)
- nissen fundoplication (44)
- no actual diagnoses yet (1)
- Nodule Heterotopia (1)
- non verbal (1)
- O2 dependent (12)
- obesity (1)
- obstructive apnea (2)
- Oesophageal Atresia (1)
- omphalocele (3)
- One Kidney (1)
- One Lung (1)
- open PDA (1)
- Opitz G Syndrome (1)
- oral adversion (3)
- oseophageal atresia (2)
- Osteopathia Striata with Cranial Scelrosis (1)
- osteopenia (1)
- Oto-palatal-digital Syndrome (1)
- oxygen dependent (3)
- Pallister Killian Mosaic Syndrome (1)
- Panhypopituitarism (2)
- Paradoxical Vocal Cord Movement (2)
- Paralisis Bilateral de Cuerdas Vocales (idiopatica) (1)
- Paralyzed Vocal Cords (1)
- Paraplegic (1)
- partial agenesis of the corpus callosum (1)
- Partial trisomy 7q (1)
- partial vocal chord paralsys (1)
- Patent Ductus Arteriosis (1)
- Patent ductus arteriosus (31)
- Patent Forman Ovale (1)
- PDA Ligation (1)
- Perforated Stomach (1)
- Peripherally inserted central catheter (1)
- Periventricular leukomalacia (7)
- Persistent bronchial collapse (1)
- Persistent Buccopharyngeal Membrane (1)
- Persistent pulmonary hypertension of the newborn (2)
- pfeiffer syndrome type 2 (1)
- pharyngomalacia (1)
- Pierre Robin Sequence (28)
- Pierre Robin Syndrome (1)
- Placenta Rupture (1)
- Pneumothoraces (1)
- Portal Vein Thombosis (1)
- portocath (1)
- possible treacher collins syndrome (1)
- Preemie (145)
- Premature Birth (1)
- Prematurity (1)
- pseudohypoparathyroidism (1)
- Ptosis (1)
- Pulmonary Agenesis (1)
- pulmonary atresia (1)
- pulmonary hypertension (19)
- Pyloric Stenosis (3)
- Quadriplegia (1)
- Quadruplet (2)
- Rare Chromosome Deletion (1)
- Reactive Airway Disease (4)
- Reflux (102)
- Renal Failure (1)
- Renal Hypertension (1)
- Respiratory distress syndrome (3)
- Respiratory Failure (3)
- respiratory insufficiency (1)
- Respiratory Syncytial Virus (4)
- Restricted Airway (1)
- Retinopathy of prematurity (36)
- Right anterior hemi-diaphragm paresis (1)
- Right Polycystic Kidney (1)
- Robertsonian translocation (1)
- Rocker-bottom Feet (1)
- sacral dimple (1)
- Scarred Vocal Cords (2)
- Schizencephaly (1)
- scoliosis (10)
- Seizure disorder (44)
- Seizures (1)
- Seizures & upper airway softness (1)
- Semi-lobar Holoprosencephaly (1)
- severe reflux (1)
- Shortened Radius Limbs (1)
- Sickle Cell disease. (1)
- Siezure Disorder (2)
- Single Kidney (1)
- Skeletal Dysplasia (3)
- Sleep Apnea (4)
- small airway (1)
- Small Corpus Collossum (1)
- Spastic Diplegia (1)
- speech delayed (1)
- Spina Bifida (6)
- spinal anomolies (1)
- Spinal Cord Injury (1)
- Spinal Muscular Atrophy Type I (4)
- spondylocostal dystosis unknown type (1)
- static encephalapathy (1)
- stenosis left lung (1)
- Stickler Syndrome (3)
- Still Unknown (1)
- Stridor (2)
- Stroke (3)
- Subglotic Stenosis (1)
- Subglottic Cysts (1)
- Subglottic Edema (1)
- Subglottic Hemangioma (3)
- Subglottic Stenosis (127)
- Subglottic Web (2)
- suglottic stenosis (2)
- Supraglottic Obstruction (1)
- Supraglottic Web (1)
- Supraglottoplasty (1)
- suprastomal collapse (1)
- suspected cerebral palsy but not yet diagnosed (1)
- Swollen Airways (1)
- Swollen Vocal Cords (2)
- syringohydromelia (1)
- t-tubes (1)
- T5 Butterfly Vertabrae (1)
- Taybi-Linder Syndrome (2)
- Teratoma (1)
- tethered spinal cord (4)
- Tethered Vocal Cord (1)
- Tetralogy of Fallot (6)
- Tetrology of Fellot (1)
- Thoracic Insufficiency (1)
- thoracodystrophy (1)
- thyroid disorder (1)
- Titanium Rib Implants (1)
- tongue falling back (1)
- tongue falls back (1)
- torticallus (1)
- trachamalacia (1)
- Trachea Tears (1)
- tracheal compression at the innominate artery (1)
- Tracheal Esophageal Fistula (19)
- Tracheal Stenosis (7)
- Tracheal Tumor (1)
- Tracheal Web (3)
- tracheo stenosis (1)
- tracheobronchomalacia (17)
- Tracheoesophageal Fistula (9)
- Tracheomalacia (92)
- Transient Myasthenia Gravis (1)
- Translocation Chromosome 3 7&11 (1)
- Transposition of Great Vessels (2)
- Traumatic birth (3)
- Traumatic brain injury (3)
- Treacher Collins Syndrome (3)
- Triplet (5)
- Trisomy 18 (1)
- Trisomy 22 (1)
- Trisomy 9 (1)
- Turner syndrome (1)
- Twin (38)
- Underdeveloped lungs (2)
- underdeveloped thumb (1)
- Undiagnosed (1)
- Undiagnosed Neuromuscular Disease (1)
- undiagnosed neuromuscular disease/disorder (2)
- Undiagnosed Syndrome (2)
- Unknown form of Muscular Dystrophy (1)
- unknown Syndrome (1)
- upper airway obstruction (1)
- upper eyelid colombas (1)
- Urinary Catheter (1)
- VACTERLS Association (5)
- Van Der Woude Syndrome (1)
- Vascular Ring (1)
- Velo Cardio Facial Syndrome/ 22q11.2 deletion (1)
- Venilator Dependent (1)
- Ventilator Dependent (68)
- Ventricular Septal Defect (19)
- Ventriculomegaly (1)
- Vertebral Malformations (1)
- Vesico-ureteral reflux (1)
- Vesicostomy (1)
- vesicoureteral reflux (2)
- Vision Impairment (4)
- Vocal Cord Granduloma (1)
- Vocal Cord Obstruction (1)
- vocal cord paralysis (86)
- vocal cord paralysis (left-side only) (1)
- VP shunt (4)
- webbed vocal cords (3)
- Whopping Cough (1)
- Williams Syndrome (1)
- Wilson-Mikity Syndrome (1)
- Wolf Parkinsons White Syndrome (1)
- X-Linked Myotubular Myopathy (3)
