26-week preemie with tracheal stenosis, trached at 2 months, single-stage reconstruction at 2 1/2
Carnitine deficiency, chronic lung disease, hypothyroidism, mitochondrial mopathy,
mommy's princess
20 Month Old Boy: Born with pulmonary hypertension and trachamalacia. The Joy of my Life!
Gabe is our 18 month old son with a trach, vent and g-tube 24/7