I need more info???
Hi all~
I'm new to this site and was wondering if someone could give me more info from their experience :)
I have a 2/12 yr old w/ a Trach due to vocal cord paralysis (or as I like to make clear that it is her adductors that are paralyzed not both vocal cords). I was told by her ENT (that she has been seeing from birth) that her trach would come out around two yrs of age, well that didn't happen and now we are being told that it could be another 5-10 yeras??? So I went to another Dr for a 2nd opinion and she told me that there is only a 5% chance that she will be ablt to get her trach out w/o surg???? What??
Does anyony have any more info?? I didn't know that there was surg for her condition until 3 weeks ago??
Any info that you might help wpuld be great. Thx, Darci
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I am also new here.
I have a 10 month old son who was born with esophageal atresia and some other complications like tracheomalacia laryngomalacia and bronchomalacia and also atalectsis of the lungs i have a website for him at kaylapearson.com and i was wondering what everyone thought, i have been working on it very hard so that one day he will have it to look back on, any comments at my .com would be so greatly appreciated just wanting opinions.
Other Alternatives
I have a 17 month old with a trach, due to vocal cord paralysis and was also told that it would take 6 months to 2 years for his vocal cords to "wake up" and start working again. It has also been 2 years and they are still paralyzed. Our ENT just keeps saying be patient. I started researching different alternatives and one that I found was a procedure called -Endoscopic Posterior Cricoid Split with Rib Graft. The articles that I read about it listed Dr. Andrew Inglis as the surgeon. He is at Seattle Children's Regional Medical Center. I called and talked to Dr. Inglis' nurse and she had Dr. Inglis to call me back to discuss my son's situation and whether it would be a beneficial procedure. He seems to think it would be and told me to talk to my current ENT about it. I think it may answer several of your questions if you give Dr. Inglis a call. He is a very nice and helpful doctor.