TrachKids.org

Well, my Lillie is now 2 years old and still no luck in removing her trach. :(  I have became very discouraged now because when she was born her ENT said she would only need the trach for about a year and now a year later and about 35 surgeries there just doesn't seem to be much success in removing it. Every time I think things are going well yet another set back happens. We were supposed to try her with a passey muir last month and that didn't happen yet either. I sometimes find myself very confused and depressed because no one told me it was going to be like this. I wasn't told how hard it was going to be to remove her trach and because I knew nothing about traches when she was born I kinda bought in to everything her Drs were telling me and it's just not like they said it was going to be. I sometimes feel Drs leave me in the dark on things even though they don't....I just don't know how much longer I can put her into surgery and not have a good result. I mean, I know nothing in life is a sure thing and life is meant to be hard but I just never thought it would be this difficult. Has anyone else out there ever felt like this and if so how did you get through it! Any help would be great....I know I'm not the only person who has been through this...I guess I'm just having a hard time figuring out hopw I sould feel and how to deal with all this madness.