I don't know what to do!!!
28 May 2010 - 1:52pm — toni
Hello, everyone! I am at a loss...my baby,Lillie Brooke is on her long road to having her trach removed and now that she is on her 23rd surgery with little results I just don't know how to take this anymore. She's done alright so far..I mean with her ups and downs with the process,but, I just wish someone would have told me in the begining how hard it was to remove her trach!!! She is going in to have her trach down sized in a few days so that's good but does anyone have some advice on how to get through this long hard process ?
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i am so sorry you are
i am so sorry you are dealing with this. we were just decannulated yesterday and my baby is 17 mths old. I cant imagine having to go longer and my heart aches even more to those who have to live with a trach (or even worse a vent) for the rest of their lives. =(
That is a lot of surgeries for your little Lillie. Hopefully soon "the" surgery will happen that will lead her right to her decannulation!! Prayers for you and your baby! ((hugs))
Thank you very much for your
Thank you very much for your kind words! I am very happy to hear your baby was decannulated! That is wonderful news! I can't wait until I finally get that same news. I'm sure it will come one day....I just wish it would be sooner than later. My Lillie is going to be turning two in less than a month and no luck getting her trach removed. Every time a surgery is done I pray for good news but it hasn't came yet. Maybe soon is all I can tell myself. I would love to be able to hear her sweet voice.
thinking good thoughts for you
I certainly understand where you are at, they told us 4 years ago Ally could be decannulated and we may finally be here. Hang in there, ask questions and seek second opinions if you need too, you are in my thoughts, tkdeso
Thank you for understanding
Thank you for understanding and giving me words of advice. I know I'm not the only parent at a loss..My Lillie is almost two I can't imagine going through this for four years! I hope and pray Ally is there and everything goes great! You and your family will be in my prayers! Maybe one day I will be able to say my girl is ready for decannulation...she's just not there yet. Good luck with everything!!!