What happens next ?!?
Well, Lillie's 1st birthday has passed by and her trach still has yet to be removed. She sees her ENT again in November and her whole family is praying that's when the DR. will say it's time. We want to hear her speak more than anything and now that Lillies' 15 months old now we can only hope we'll hear her beautiful voice soon. Life has changed a little now that she has gotten older but it's still hard. In the small town where we live people are small minded and have never seen a baby with a trach and we often get stares or just plain rude comments. I just can't wait until my baby can be classified to what many people think is "normal". I love her with all my heart and just wish the rest of the world would see the delightul girl she is instead of just seeing a plastic piece in her neck. I'm not sure what will happen if her trach is removed next month and my heart is begining to race with worry.
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Comments
How's it going?
Keep us posted! I can't wait to hear the good news! You keep hangin in there and the day will finally come.
Passey Muir?
Hi Toni,
I dont know if you already looked into this or if its possible with your daughters medical reason for her trach. But - have you given thought to a Passey Muir valve? If not a Passey - you may also want to look into a Montgomery Valve. Both of these will allow your daughter to talk and you will be able to hear her voice! My son Clinton is 22 months old this week and has used a 'speaking' valve since he was about 10 months old. Check with your Dr and let me know how it works out.