TrachKids.org

Well, my Lillie is now 2 years old and still no luck in removing her trach. :(  I have became very discouraged now because when she was born her ENT said she would only need the trach for about a year and now a year later and about 35 surgeries there just doesn't seem to be much success in removing it. Every time I think things are going well yet another set back happens.

Well, it's June 10th and Lillie is about to go into her 25th surgery :( After this surgery her Dr. is going to try to put a passey muir valve on her which is exciting and scary at the same time. She's about to turn two in a few weeks and I have never heard her voice,but,at the same time I don't know anything about this valve except the info her Dr. gave me.

Hello, everyone! I am at a loss...my baby,Lillie Brooke is on her long road to having her trach removed and now that she is on her 23rd surgery with little results I just don't know how to take this anymore. She's done alright so far..I mean with her ups and downs with the process,but, I just wish someone would have told me in the begining how hard it was to remove her trach!!!

Well, Lillie's 1st birthday has passed by and her trach still has yet to be removed. She sees her ENT again in November and her whole family is praying that's when the DR. will say it's time. We want to hear her speak more than anything and now that Lillies' 15 months old now we can only hope we'll hear her beautiful voice soon.