Hello All - its been a while since I posted anything or even visited the site. Clinton has been taking up my time just as much as any other 2 year old.
Clinton had his rib graft surgery in October and today we still have the trach. We have been capping him most of the day but at the same time he has been striderous. Its very odd - he will be quiet at the beginning of the day and get noisy as the day goes on the strider becomes greater and sometimes he may have some chest retraction. Our Dr. feels confident that Clinton will be able to be decannulated but my husband and I dont feel as confident. I have been contemplating calling Dr. Cotton and I finally did last week. We love our current Dr. and feel that he has done all that he can up to this point. I have read on many different websites of the success stories with Dr. Cotton so I am hoping that we will be just as successful.
If anyone has any information that they want to contribute about their experience with Dr. Cotton or the Cincinnati Children's Hospital Medical Center I would love to hear.
Thanks! LauriTiggerifficfun@aol.com
We heard back from Dr. Cottons office last week and they want to run some tests. I am waiting - once again - for them to get back to me about the dates. Insurance is whats slowing us down this time. They are waiting on approvals from the insurance company. Currently they are scheduling appointments for May - by the time they get the approvals through - we may be looking at possibly (hoping not much longer than) June or July....
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Thanks for the info Brittany - I sent you an email. :)
Cincinnati Childrens
Lauri,
My son was born at Cincinnati Childrens (Fetal Care program) and spent 60 days in the NICU, before being transferred to a NICU back home. Micah was trached at 5 weeks old and has been followed by Cincinnatis ENT department ever since. We've had a great experience with our team of doctors, although we haven't had any interaction with Dr. Cotton. We've mainly had Dr. Elluru and he's been great. We're actually down here right now! If you have any questions, feel free to email me at tbhartman@hotmail.com
Take care,
Brittany