Jagger is now 20 months old and has had his trach since he was 2 1/2 months old. He was born with a TE Fistula and during his repair surgery the retractors damaged his vocal cords causing him to have bi-lateral vocal cord paralysis. I just recently learned that there is a surgery (Endoscopic Posterior Cricoid Split with Rib Graft) that may be able to make where Jagger can have his trach removed. If there is anyone that is familiar with this procedure, please let me know. I have tried to find some info on the internet but with little luck. Jagger went last month to his ENT to have his vocal cords checked again, however there was no change. Both vocal cords are still paralyzed. :( I spoke to Jagger's ENT about the surgery and he said that he would be a good candidate for the surgery but would like to wait until he is 2 1/2 or 3 before giving it serious thought. I know that the procedure is still pretty new, so any info would be greatly appreciated and would maybe calm my nerves.
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Endoscopic Posterior Cricoid Split with Rib Graft
Hi, I just read the profile of a trachykid Clara Chilton who was decanulated from having Endoscopic Posterior Cricoid Split with Rib Graft. The surgeon was Dr Andrew Inglis at Seattle Childrens Regional Medical Centre. You can e-mail her mum Barbara from the profile. I too have a 6 month old baby with vocal cord paralysis and a trach. Good luck!