We were so hopeful when we flew to Calgary, thinking & praying we would hear wonderful news about possible decannulation for Jameson. It was our first Trache Clinic & with in a few hours they did the vocal corde test & they told me that there was no function with his vocal cordes. I was in shock & all I could think of was why?! Our questions were answered & with in days tests were performed. The result was not what I was expecting, we were told that he would have his trache for life & it was strongly recommended that he get a g-tube. But they would leave that decision up to our Dr's. back home. When we arrived home the specialist thought it wasnt needed (g-tube) and we could go home with his thickened fluids and regular diet.
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my son was premature & was
my son was premature & was never able to breathe on his own. When we were in Calgary they ran the tests & the outcome was Tracheyomalaysia, he was only 3mths.old at the time. They said it would be at least 2yrs.or longer before possible decannulation. Just this yr. we find out that his vocal cordes are not functioning like they should be so that is why they told us that decannulation is not possible.
why does your son have a
why does your son have a trach...vocal cord paralysis? did you get a 2nd opinion?