TrachKids.org

Rylee passed away August 9th 2009 in our arms. It was absolutely the hardest thing we have ever had to do. On August 6th, we were under the impression we were having a meeting with the Doctors to find out when Rylee's heart surgery would be... however... it didn't go so well. We were told that there was really no option for the heart surgery; more less told they wouldnt' do the heart surgery. They said in the  4 months his brain hadn't grown at all. Meaning there would be HUGE mental issues, to the point he would never be off the ventalator, never eat on his, talk, see, hear... so many things... and that his heart was alot worse than they thought.. and essentailly he would have to have more and more and more surgiers for up to 20 years of surgeries. It was too much. We had to let him go and stop him from being in so much pain. We will love him forever!