July 12th

12 July 2009 - 3:48pm — shannon_serendipity

Still the waiting game. Rylee's been having some pretty horrible days .. where they are having to raise his PEEP and Pressure on teh ventalator, as well as raising his oxygen to keep his stats up high enough that he doesn't go into heart failure. It's hard. So Hard. To see him in so much distress is incredibly hard and stressful. But we must keep our hopes up. Our little man is definately a ture fighter. There's purpose for this little guy if he has already beaten the odds on so many things.