TrachKids.org

It's hard to believe my twin miracles are 7 years old.  Its gone so fast... yet what a long road!  Ryan and Madison are going to start the 2nd grade in August.  Ryan goes to a Life Skills program, and then about an hour of classroom time each day.  He is blessed with a great Life Skills teacher, as well as a Para.
Although Ryan has made remarkable progress as far as his lung-health is concerned... he has had other struggles.  He has been diagnosed with Autism, in addition to becoming Legally Blind.  He is amazing as far as letters, spelling and numbers... and is interested in music.  Anyone that meets Ryan falls in love with him... but it's always been that way. 
In the last year we have been trying to fight a retina detatchment in his left eye.. I took him to Detroit, MI for surgeries, as well as KU Med in Kansas City.. and were told this past month that there is nothing more they can do for his left eye.  In addition, his right retina is beginning the same process... but as a parent I have hope and faith that his right eye will survive.   He will begin learning braile, and increase his practice walking with a cane in preparation.  It will be quite an adjustment for Ryan as he is such a sighted learner.  But I will do whatever possible to get him what he needs.   I cannot imagine the frustration that is ahead for him... if/when he loses complete sight.  Sometimes I wonder "why is he going through this... he has been through so much in his little life."... But I have to continue to have faith... and be thankful for having my Sweet Boy... no matter what.   I will try to update more often.. it's been nice hearing from some of you..  please don't hesitate to contact me for questions or support.  -- Gwen