TrachKids.org

Hello every one, Happy New Year.  It's been a while since my last post, but I wanted to share the good news regarding my daughter Alaya.  We visited her Pulmonary Dr. on January 13th and what great news... She has discontinued the use of oxygen, this was due to Alaya's recent sleep study, which was great.  In 10 weeks we go back and if all things remain the same or even better, the Dr is going to discontinue the use of the vent at night. So that means no more vent yeyyyyyyy!!! After that she says Alaya is basically ready to start the DECANNULATION process.  She says we should have her decannulated by late spring, or early summer.  I can't believe it, I thought we'd be dealing with the trach for at least another year.  My baby is 16 months old and she is making wonderful progress.  she is so strong and determined to beat the odds.  I am so proud of her.  Beleive me when I tell you, that your child will absolutely amaze you.  Stay strong everyone, I'll keep you posted.  God Bless!!