TrachKids.org

Hi everyone, i just wanted to  stop by and let yall know that alexanxder was decannulated this morning here at vanderbilt. He is doing grrreat!!   His sats have been higher than 96% his ♥ rate has been normal hopefully we are getting to go home tomorrow!!

Ok so alex will be going into surgery on monday april 11 at 7:30am at Vanderbilt for the removal of his adnoids=] hopefully by the next day he's swelling is gone and then the doctors are going to try to decannulate!

So i recieved a call yesterday from the team, ent, pulmonary,and digiestive doctors. They lady said we have alexander scheduled for a removal of the adnoids!...and a deccanulation...omg...I didnt know what to say!

So alexander went into the OR for an evaluation for a future decannulation. Before the drs took alex i ask if there were any chances that alex had made an amazing progress. I asked what they thought from the outside point of view....They said we dont think so but there is always a chance...so they took him back, an hr later the drs came out it was the pulmonary and ent.

hey everyone well we were scheduled for an or visit on nov 1 but the dr canceld it=[ now we are going on monday the 22 of nov...i super excited bc alex is doing great and we are going in for an evaluation for a future decannulation=]

so its been a while since my last update. Alexander is doing very very good! im so excited he has done a very great progress. On november 1 he will be going into the OR for an evaluation for a decanulation! im also expecting my 3rd bby. i just found out on friday!

Hello, as everyone know alexander just got off his vent. Wow its been much more easier=]...but now we have to go to the OR to see how his doing with his tracholbroncholmalacia, and subglottic stenosis.

hello everyone, as all of you know im alexanders mom, we have been threw allot, and when the doctors say possible decanulation its like,OMG=[HOW would we ever live without a trach. Its like hey if he has trouble breathing we all know that its just a tube on his trach an the vent is ON, AND WITHOUT THE TRACH THEN COMES INTUBATION!

hi, everyone...

♥ I am very happy! Alex passed his swallow study today. He can now drink liquids and food... I never thought this would happen... but you know never to loose your faith...