ANNOYING
So Tuesday came and left and Esme did not get the G-Tube I get into the hospital on Tuesday morning expecting to see the surgeon and give authorization for the G-Tube produce however when I get in Esme is as pale as a ghost and her vent settings not changing one bit (still very high). So she gets there and I'm already annoyed having gotten a phone call for a telephone authorization when I clearly told them I will be there at 9am please do not call me because I freak out 99% of the time when I see the hospital number and what did they do that's right they called me sometime I'm not sure these people have much storage in the heads for common sense anyway she tells me that with the vent settings are the level they are she feels uncomfortable opening up her abdomen because in her opinion she won't make it through the surgery basically I feel Methodist has the worst communication amongst doctors it's ridiculous because for an entire week the NICU doctors were telling the surgery team Esme was fine and all was good when I haven't seen my daughters settings change since New Years so I'm lost I have no faith in the NICU doctors I have faith in my daughters strength but not in the hands she is in I have a long weekend ahead of me I will start looking for some other place for her whether it's close or far another hospital to give her a chance at life God choose me to be Esme mother and as her mother I can't give up if by chance she has to stay at Methodist a little longer I will continue to fight to change things for her I have too
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Choces and Options
I am glad to hear that you have options to move her. Give it a try, you can always get her moved back if it doesn't work out.
You will have to get the dr there to call the other dr at the other hosp to see if they can take her. I mean, hey, you have the right to a second opinion!
I am so sorry to hear that your baby has not been doing well. Maybe she has an infection? I hope she gets well soon so she can get her g tube surgery. We did not get the fundo and my daughter's doing fine on zantac. We haven't gotten a PH probe study done, but I'd recommend while she's in the hospital anyway, get one done. It's to determine if she has reflux. And of course she will have to be OFF her reflux meds (if she is on any)
I wish we had done that. I'm putting it off until it MUST be done cause we have to go back in the hosp for that and you know, once you leave the hosp you never want to go back!
Keep us posted dear and try to hang in there. I understand how annoying NICU doctors can be. Believe me. 14 months of the same NICU can get annoying because by then you've figured stuff out quite well.