MERRY CHRISTAMS & HAPPY NEW YEAR!!!!

Well it has been some time since I have blogged about my little critter, she is well right now she has been through many rough patches since I last updated everyone. Infections as always and now she has MRSA it's like Esme wants to have her fun before the new year because she knows she has to keep up her end of the deal so lets see how that works. Her deal being she gets better and does her part and when she comes home I will spoil her just as much as her big sis is spoiled. Backing up a bit THE FAMILY MEETING well didn't go anywhere in fact the doctor upset me & my husband so much I had to go to patient relations and request a hospital family meeting that went okay. So far much hasn't been able to get done because of the hoildays so lets see after she gets over this MRSA!!! Whats is suppose to get done we all agreed that she needs rehab however we also agreed that she needed to go somewhere closer because I will need to learn how to take care of her and westchester was just not an opition. I have come to terms with it and I totally am making an effort to be ready for the day she goes to rehab because yes I do want her closer but the truth is there is no rehab in my brough so I will have to travel so that being said it may take me not seeing her everyday and I am sort of okay with that because I know that this is what she needs to get better and I want her better and well the end result of her being home will be worth the time apart. A very good thing about rehab will be that when I do get to see her I will be able to bring her big sis along and I know her big sis will be happy about that, it's been very hard on her knowing that her sister is sick and she can't even see her. Well that all being said I would like to wish you all MERRY CHRISTAMS & HAPPY NEW YEAR!!!! XOXOXOXOXOXO, FROM MY FAMILY TO YOURS!!!

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I also have a child like

I also have a child like yours he is on a home vent everything will be ok feel free to ask any questions thats what we are here for. take care

My son is also on a home vent

Hi,
         My name is Nellie, my son Alexander has a trach 3.5 uncuffed Bivona. His medical Diagnosis is tracholbroncholmalacia meaning floppy airways, Subglottic stenosis meaning narrowing of his trachea, GERD( reflux) he has a nissen fondoplication for his reflux, and a gtube. If you have any questions feel free to email me a rafael.reyes12@yahoo.com I can send you some pics of alex on his home vent. He can come off his vent when his not sick, while he is off he uses an artificial nose that goes on his trach so no bugs or anything in the air can go in there. Cant tell you not to be afraid because I was too. But thankfully there is the web were parents like us can meet. Thanks God bless
                         Nellie (baby Alexander's mommy)

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