TrachKids.org

 I never thought Nicky might be able to speak so it came a shock to me when our ENT Surgon told us that one day nicky could have a completly normal voice and vocalcord palsy does not stop people from talking. Wow, them news have blown my mind. 

We went to  have nickys trach upsized and a scope last week. She was due a speaking vaulve as well, but due to the rather disappointing results and no progress on her vocal cords what so ever the speaking vaulve wasn't given.

Nicky has pulled her trach out last night, luckyly we were able to pull one straight back down. She went blue so quick. It was such a scare. it might sound silly but i don't dare to go to the bathroom anymore a few minutes more and she might not be here anymore.
Has anyone else had such dangerous close calls? How can I prevent this? 

Lucy

Hi everyone, 

I would like to find out how you are bathing your kids without water running down the trache. Nicola is 11 months old and it is a nightmare to rinse her hair after her bath and impossable to keep her swedish nose dry and water out of the trache-tube.

Thanks,
Lucy