TrachKids.org

  I have had my daughter home for about two weeks and I have no Idea how a single person with no home healthcare can jugle a vent dependent, oxygen dependent/ g-tube child 24/7!!! My husband and I had to rush our daughter to the e.r. because her fresh! 2 week old g-tub (micky) pop'd out completley with the baloon filled suprisingly My daughter didnt feel any pain.. by the time we got to the hospital the track was gone. The people at the hospital didnt even know what a vent was and it was terrible because our vent was on low batt and the pug in the e.r. didnt work ........by the time we got back to the e.r the  nurse told my husband why didnt you bring the severity of your daughter's condition to our attention.. My husband said seriously thats what we been doing for the past 4 hr's you moron!! My main question is How do parents do it how do you get organized? how do you find time to spend as a family with out haveing to worry about your baby haveing a cynosis episode? How do you spend time with your signifigant other when you have no baby siter you can trust and your home healthcare agency has terrible review's so terrible that they have had children get brain damadge because they were not promptly trained on hand baging a trach paitent???I never used the agency but  funny thing the hospital warned us about the agency... how do you even things out and find peace?