TrachKids.org

So I recently transferd my daughter's primary care from chla to choc and to day was her first oral evaluation to see if my husband and I can set stepingstones that may advance my daughter from g-tube feeding's to full bottle feed's well as my husband and I chek in the hospital one of the security gaurds stop'd us and questiond if we were carying a boomb!

  I have had my daughter home for about two weeks and I have no Idea how a single person with no home healthcare can jugle a vent dependent, oxygen dependent/ g-tube child 24/7!!! My husband and I had to rush our daughter to the e.r. because her fresh!