Isabella only stayed at the hospital for one week. She was very depressed while we are there. She did not want to eat or do anything else...
We finally came home and she has back to her old self. She is eating , playing and VOCALIZING!!!!
She now can use the passy muir valve and she is learning to say worlds like Mama, Daddie, Book... its coming slowing and weak but she is getting there!
Her 3d bithday is coming up in July and on the first week of july before her big day her doctor will take look again to see if the operation was sucessful and if the trach can be removed!!!!!!!!!!!!
We praying that finally the trach can come off!
By the way! Four weeks after the operation Isabella pulled the trach out and she did not get blue!!!!
Comments
Hi, I just saw your message
Hi, I just saw your message on Cameron Peak's page. How is Isabella doing now? Cameron and Charlotte are both doing great Charlotte was decannulated in May of 06. She has a page as well. My email is ALP42290@aol.com
I will pray so that they can
I will pray so that they can remove trach completely I can wait until I hear something like that. Cristian is a 9 month old baby who's been having a trach since January 2009, I'm pretty new to this and scare will love to hear more experiences from you so that I could help my little one.
hi
Wow, that sounds great! Congratulations and we are all rooting for her decan!!