Hello Everyone!
24 August 2008 - 10:52am — cari
I am new to this sight and so happy that I have found it. Our 11 month old daughter is still in the hospital and on day 23 of having a trach so we are still trying to take everything in. I would love to know of any stories about vocal cord paralysis as we are still unsure if her trach is permanent and how it will effect her speech. Any information or advice would be great! Thank you!
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Hang in there!
My son is now 15 months old. He was diagnosed with a TE Fistula just a few hours after birth. The TEF was repaired when he was less than 24hours old. As a result of the surgery, his vocal cords were paralyzed. He stayed in the Neonatal ICU for 3 months and had a total of six surgeries. One of his last surgeries was his trach. They don't know how long he will have to have it, but he is doing very well. When I was pregnant, I asked God to send me the child he intended me to have. I didn't pray for the specifics, just for God's gift to me and my husband. When we found out of my son's medical condition and what all that he would go through, I knew that it was going to be a long road. But I also knew that it was a road that our family was intended to travel. My little boy is a miracle and so is your little girl.
Hi there
I am a mother of a 2/12 yr old w/ vocal cord paralysis. Emma was Trached at 5 days old.
We are still unsure if she will always have her Trach or not. We were orig told 2 yrs and now we are being told 5-10 yrs???
Emma didn't start to talk until she was abt 18 months old. She can talk around her tube w/o her pai-muir valve :) it just sounds a bit breathy :)
I assume that she sounds like she would w/o her tube, she is not as loud as most children (but that can be a blessing at times).
We did have her in speech therp until abt 4 months ago.
I can say that I promise it gets easier w/ the trach. It was so hard for me to feel comfortable w/ it at first but now it is second nature and I don't think much of it.
We are still unsure at this point why Emma has her trach. She was born a bit early but they say that has noting to do w/ it???
My husband and I think that her Laryngeal Nerve could be damaged and we shall know soon as we are going to do a CT Scan to find out.
I hope this helps you in some small way. Just know that you are not alone :)
Darci S.
Oregon
hey. Do not worry. My son
hey. Do not worry. My son has had his trach for over a year and he has been talking around it for a long time. It all sounds scary now but it does get easier. It will become just like anything else you need to do with a child. Carsons speech has been delayed a little but he always wanted to talk so bad so now he is. As long as you have a speech therapist she will do fine. God bless you and good luck.