Ok...she has SGS, so now... does anyone have any experiences with reconstruction surgery? We have a consult next week. On a good note, the bronchoscopy shows good lungs!
head to the message board - lots of kids there have had the reconstruction :) clare.
(we are set to go in with emily for reconstruction in a few weeks time!)
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head to the message board -
head to the message board - lots of kids there have had the reconstruction :)
clare.
(we are set to go in with emily for reconstruction in a few weeks time!)