TrachKids.org

Hi, Brooklyn has taken to untying her Dale brand Pediducks and 240 Trach Ties. She accidentally decannulated herself again this morning. We've been supergluing her trach tie velcro down, but it doesn't always hold.

Hi my name is Brooklyn and my mommy and daddy wanted to take me down the slide,but are concerned with the static electricity and the oxygen that I'm on......There are known hazards with using cell phones at the gas pumps (explosions have occured).

Ok...she has SGS, so now... does anyone have any experiences with reconstruction surgery? We have a consult next week. On a good note, the bronchoscopy shows good lungs!

You should see me, I'm taking my first steps and I'm so cute! I have to go in for a bronchoscopy next month and my mommy is dreading going back into the hospital. She doesn't want to stay overnight. She's had enough of me being in the hospital!
But my pulmonologist wants to make sure I have a clean airway before he begins to wean my vent settings. So... we are stuck.