TrachKids.org

Its been over a year since Ms. Lola got her trach removed and she is doing fantastic!!! We are currently working on getting her caught up on speech development. I hope everyone else out there is doing great!. Try to make the best out of your situations and know that there is always light at the end of the tunnel, no matter how dark and hopeless it might seem. xoxoxo

On December 9th, 2011, we made our third transfer in five months. This time, to an area PICU better equipped to handle Little Bird's complex breathing requirements. The new facility is wonderful, we get to bunk in with her (one at a time, of course), in her own private room (slumber party, anyone?).

Hello everyone, after 2yrs,10months,29 days...Alaya was DECANNULATED on 9/29/11.  She is doing GREAT.

My 2 yr old daughter Aryana just went in for an LTR today:) with anterior and posterior graft~
Were so nervous but are expecting nothing but the best!

She's had such a rough course with surgeries- first her esophageal atresia repair with resulted in vocal cord paralysis - and then two failed complicated nissens , and then a code with difficult intubations

:)

LOLLIPOP KIDS FOUNDATION

Mission

Hello everyone, the time is so near I can hardly type this update, I'm so excited. My daughter Alaya will be 3yrs.

Hi Im looking for feedback My daughter may be decanulated at Stanford And may possibly have her stenosis laser if there is no scar tissue behind her vocal chords, if any one has been through this experience or similar I would love feed back especially if you have any experience with stanford ENT would be great - Audrey

Lillie Brooke has her decanulation scheduled for September 8,2011! I can't believe this long adventure is coming to an end!I am excited and scared at the same time! I don't know how lillie is going to react without her "necklace" but I can only hope that the new adventure we have coming our way goes well!

Lillie Brooke, now three years old, passed her sleep study beautifully and is now being put on the or schedule to have one last broncoscopy done and perform her decanulation! I can't believe the time has finally come! I'm unsure how to react, but I'm sure it will be a wonderful experience! I'll finally be able to hear her voice for the first time!

 I never thought Nicky might be able to speak so it came a shock to me when our ENT Surgon told us that one day nicky could have a completly normal voice and vocalcord palsy does not stop people from talking. Wow, them news have blown my mind.