TrachKids.org

we had a visit to the ent specialist today and had a look at tylers voicebox...what a clever wee bub he is! tylers voicebox was moving so he is going to be able to have the trache removed!!! we are just waiting to hear back from another hospital to find out where and when it will happen! man it will be weird not having it anymore!

Well,my daughter Lillie had her last stent removed and her ENT has now decided not to do anything else to her for about six months to let her grow a little so it looks like she'll have her trach another year or so. Her body just doesn't want to do what it needs to do to remove it.

Hi everybody,
My son Chase is due to have Vocal Cord Lateralization surgery in September and I am very nervous about it since I dont have any information about it. If anyone knows anything about it please send me an email. I really appreciate your help.
Best,
Miranda

My baby,Lillie is scheduled to undergo another stent removal next week and I'm very nervous about this one!

Today is the first day we have been able to try Tyler without his Nasogastric tube! Has gone okay so far, overnight will be the challenge though I think.

Madison's trach was removed June 29th and she is doing GREAT!!

Well, my Lillie is now 2 years old and still no luck in removing her trach. :(  I have became very discouraged now because when she was born her ENT said she would only need the trach for about a year and now a year later and about 35 surgeries there just doesn't seem to be much success in removing it. Every time I think things are going well yet another set back happens.

Hi all,

Hi, Brooklyn has taken to untying her Dale brand Pediducks and 240 Trach Ties. She accidentally decannulated herself again this morning. We've been supergluing her trach tie velcro down, but it doesn't always hold.

Well, it's June 10th and Lillie is about to go into her 25th surgery :( After this surgery her Dr. is going to try to put a passey muir valve on her which is exciting and scary at the same time. She's about to turn two in a few weeks and I have never heard her voice,but,at the same time I don't know anything about this valve except the info her Dr. gave me.