Blogs
Palate Repair!
26 February 2010 - 7:50am — Lisa xWe were at an appointment last week and scotts consultant is really pleased with his progress .. Hes now on the list for surgery to get his palate reapaired and they are very optimistic that he may be decanulated shortly after :) .. Ill keep u posted !
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My little angel Safaa
24 February 2010 - 11:17pm — safaahasaanI missed my little angel Safaa. She passed away on 3rd of January in the ICU mafraq hospital.
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Dr. Robin Cotton - we may go visit him in Ohio
23 February 2010 - 9:15pm — TiggerifficfunHello All - its been a while since I posted anything or even visited the site. Clinton has been taking up my time just as much as any other 2 year old.
Aspiration Pneumonia due to acid reflux
21 February 2010 - 10:17pm — Jaydens mommyMy son keeps having bouts with aspiration pneumonia and this is due to his feeds not working for him, he has a g-j tube and we feed him through the j. He tolerated this well for awhile untill he ripped his g-j tube out, than it was replace with a mickey button g-j tube.
She's almost there!!!
10 February 2010 - 3:21pm — toniIt's been a while since I'v posted anything due to Lillie being in and out of surgery. She just hadher "BIG" surgery Jan. 21st and is doing well. Drs removed all the webbing in her windpipe and voice box, rebuilt a lot of her voic boxad put in a stet to strenghten her airway. She goes back into surgery Feb. 17th to remove the stent and see if it worked.
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* Progressss
10 February 2010 - 1:45pm — Lisa xJust another update! Scott has been coming on leaps and bounds.. We have been teaching him baby sing language .. and just today he began to sign for milk !!! Cant belive how he has progressed in the last few months Can roll over, Sit unsupported, and clap his hands.. To think he onced was soo small in hospital struggling to breath..
Update xx
30 January 2010 - 4:07pm — Lisa xBeen such a rollacoasterrrrr. Just before christmas scotty got his scope things are looking good he has a slightly floppy windpipe but nothing to worry about which is great x Just after christmas hes got bronculities AGAINNNN but was also RSV positive he was in hospital for 8 days was having help feeding and breathing almost got put on a ventilator but my little fight
Alaya's On Her Way
21 January 2010 - 1:51pm — rheareHello every one, Happy New Year. It's been a while since my last post, but I wanted to share the good news regarding my daughter Alaya. We visited her Pulmonary Dr. on January 13th and what great news...
Movie Alert
20 January 2010 - 9:12pm — melicolon27Ok so Extraordinary Measures comes out this Friday 1/22/10 There is another Movie that is coming out that looks Good it's called Letter's to God it comes out 3/12/10!
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ANNOYING
20 January 2010 - 9:09pm — melicolon27So Tuesday came and left and Esme did not get the G-Tube I get into the hospital on Tuesday morning expecting to see the surgeon and give authorization for the G-Tube produce however when I get in Esme is as pale as a ghost and her vent settings not changing one bit (still very high).
